I was heartbroken reading the story of little Getty Storm, who at 4 months old was diagnosed with Spinal Muscular Astrophy. This horrible disease is the number one killer of infants under the age of 2. Heartbreaking. As I sat with my little girl who just turned one, I was thinking about Getty who just celebrated her first birthday. Her parents may not get the joy of celebrating her second. It's just not fair.
I can't imagine what these sweet parents have gone through for their baby, and I'm rocked by all they are doing to spread the word and make a difference for other children affected by SMA. All the proceeds from this incredible lullaby album go to the Getty Owl Foundation. So cool.
Many of you who read my blog have tiny ones of your own. Download this album for them, and for the families that won't have long with their precious babies. Let's do our part to bring hope and make a change.